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Chronic Myeloid Leukemia: Care Instructions

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Overview

Leukemia is a type of cancer that causes your body to make too many blood cells, especially white blood cells. White blood cells are a part of your immune system, which helps protect you from infection and disease.

In chronic myeloid leukemia (CML), some of the young white blood cells don't mature like they should. Instead, they may cause symptoms as they begin to crowd out healthy blood cells in your bone marrow and blood. Chronic leukemia gets worse slowly, and you may have few or no symptoms for months or years. It is often discovered during a routine blood test.

There are many treatments for CML, including targeted therapy with tyrosine kinase inhibitors, chemotherapy, and stem cell transplants. A healthy diet, exercise, extra rest, and a strong support system can help you feel better. Many people also find that getting counseling or joining a support group helps them cope with their illness.

Follow-up care is a key part of your treatment and safety. Be sure to make and go to all appointments, and call your doctor if you are having problems. It's also a good idea to know your test results and keep a list of the medicines you take.

How can you care for yourself at home?

  • Take your medicines exactly as prescribed. Call your doctor if you think you are having a problem with your medicine.
  • Eat healthy food. If you do not feel like eating, try to eat food that has protein and extra calories to keep up your strength and prevent weight loss.
  • Get some physical activity every day, but do not get too tired.
  • Get enough sleep, and take time to do things you enjoy. This can help reduce stress.
  • Think about joining a support group. Or discuss your concerns with your doctor or a counselor.
  • If you are vomiting or have diarrhea:
    • Drink plenty of fluids to prevent dehydration. Choose water and other clear liquids. If you have kidney, heart, or liver disease and have to limit fluids, talk with your doctor before you increase the amount of fluids you drink.
    • When you are able to eat, try clear soups, mild foods, and liquids until all symptoms are gone for 12 to 48 hours. Other good choices include dry toast, crackers, cooked cereal, and gelatin dessert, such as Jell-O.
  • Avoid infections such as COVID-19, colds, and the flu. Wash your hands often. Get a pneumococcal vaccine. If you have had one before, ask your doctor whether you need another dose. Get a flu shot every year. Stay up to date on your COVID-19 vaccines.
  • Do not smoke. If you need help quitting, talk to your doctor about stop-smoking programs and medicines. These can increase your chances of quitting for good.

When should you call for help?

Call 911 anytime you think you may need emergency care. For example, call if:

  • You passed out (lost consciousness).

Call your doctor now or seek immediate medical care if:

  • You have a fever or chills. Or you may be sweating.
  • You have abnormal bleeding.
  • You think you have an infection.
  • You have new or worse pain.
  • You have new symptoms, such as a cough, belly pain, vomiting, diarrhea, or a rash.

Watch closely for changes in your health, and be sure to contact your doctor if:

  • You are much more tired than usual.
  • You have swollen glands in your armpits, groin, or neck.
  • You do not get better as expected.

Where can you learn more?

Go to http://www.healthwise.net/patientEd

Enter C276 in the search box to learn more about "Chronic Myeloid Leukemia: Care Instructions".

The Health Encyclopedia contains general health information. Not all treatments or services described are covered benefits for Kaiser Permanente members or offered as services by Kaiser Permanente. For a list of covered benefits, please refer to your Evidence of Coverage or Summary Plan Description. For recommended treatments, please consult with your health care provider.